“On July 14, 2023, I was diagnosed with a rare autoimmune disease called Dermatomyositis (with Anti-MDA5 antibodies) after almost three months of doing all kinds of medical tests, scans and even a heart, pulmonary and muscle exam. “
Yes like kay kris na autoimmune disease, but i don't think they have the same type of autoimmune disease. They may have the same symptoms but diagnosis is different.
I think that's a fair question. Sa tingin ko kasi pag mayaman, mas may opportunities and means lang to get proper diagnosis and get various opinions. Unlike pag walang pera, di na talaga malalaman kung ano ang sakit at sadly, mamamatay na lang without being treated.
Anyways, about sa topic, get well soon sa future wife nya and hopefully ma-manage nila ang symptoms at di naman maging progressive.
No, it affects everyone, auto immune disease symptoms kasi could be anything, need talaga thorough test to determine it magastos po kaya usually yung may kaya lang ang most of the time nalalaman ang specific aakit nila
Hindi. Pero hindi sya madaling madiagnose at marami kang tests na gagawin to finally get to that diagnosis. Tests na karamihan may kamahalan kaya pabalik balik ka sa hospital. Kung di ka well off, mahirap to have all these tests done and baka hindi ka pa ma diagnose much less find the right treatment.
Hindi. Maraming type ang autoimmune disease. They are treatable but have no cure. I have one which is Graves disease which causes hyperactive thyroid but after radioactive iodine treatment, I became hypothyroid, which needs a lifelong hormone supplement. So walang cure may option lang sa treatment. I can't stay hyperthyroidism cuz it weakens my bones and muscles, it also causes tachycardia. So my dr opted to damage my thyroid for good to turn my hyperthyroidism into hypo which is easier and safer to treat.
Sadly pang mayaman yung gastos. Mahal yung treatment and it's not curable. You also have to get all possible screenings for cancer kasi sometimes may kasamang cancer ang sakit na to.
Hindi naman siguro pero dahil sila ang may means kaya nadedetect nila through tests, kung mga hindi magpapatingin dahil di afford di na talaga malalaman na may ganun silang sakit
No. It just so happens ang mahirap walang pera para magpa doctor. Katakot takot na test kasi yan na mahal so a local charity doctor wont be able to djagnose in just a few sessions
No. Anyone can have it. Women are more prone to have it though. They say some microorganisms or drugs can trigger changes that confuses the immune system causing it to attack itself.
im not a doctor but maraming studies ngayon linking Covid and autoimmune disease. about 46% of people who previously got Covid are showing mild to severe signs and symptoms of autoimmune disease isa na ako don. lumabas ang arthritis ko and tingling sensations sa kamay at braso mga 7 months after ko na covid. grabe ang damage ng Covid sa katawan.
Walang pinipili ang sakit. Madalas undiagnosed ang sa mga mahihirap or lack of knowledge ang lagi nila iniisip, kinulam sila. Totoo ito. Nagpunta kami sa isang remote na area sa rizal para mag medical mission. Madami sa kanila puro sugat sa legs hindi gumagaling. Sabi nila galit ang mga enkanto kaya sila sinusugatan. Yun pala mga diabetic sila. Kailangan explain sa kanila kasi hindi nila alam yung nga sintomas.
@10:16 Buti na lang may vaccine na, right? Right ba o wrong? Coz now they're blaming the vaccine naman sa recent cases ng cardiac cases sa vaccine. Nakakainis!!!
Naalala ko tuloy yung joke dati “pag mayaman, allergy. Pag mahirap, galis”
Anyhow, in my opinion, mas distiguished lang ang sakit pag mayaman, kase nag coconsult sa doctors. While sa mahihirap, madalas dinededma na lang or sa faith healer pumupunta. Also, mas malakas ang immune system ng mahihirap kase mas exposed sa nature during their younger years.
Hindi ba? Nakakapagtaka, bakit ung mga mayayaman nagkakapimples and ang mamahal ng gamot for skin care. Habang yung mga nagwowork sa clubs/bar ang kikinis ng kutis pero pa safeguard at kojic soap lang.
1:24am Hindi kami mayaman pero I was diagnosed with Hashimoto's Thyroiditis (Autoimmune Disease). You need a lot of funds to sustain the medications. :(
yaikks.. bakit andami auto-immune diseases na lumalabas lately... may kinalaman ba sa mga gamot na iniinom, vitamins na tini-take? gluta injections? mga classmates enlighten me..
I think we can link it more sa stress. Not sa vaccine. Lahat tayo nastress during that time na naging uncertain lahat. Madalas lumalabas symptoms ng autoimmune disease kapag nagkaroon ng sudden change sa katawan natin. Mostly during puberty, kapag 1st time mastress sa trabaho, kapag nakaranas ng matinding pagsubok. Etc. Rest assure majority ng meron may family history na talaga, in any form. Pwedeng lolo mo may lupus ikaw HS, Psoriasis etc. Another related topic although it's not an autoimmune disease is HIV. Baka di mo alam meron ka pala kasi pwedeng namana mo, or naexposed ka pala unknowingly. Kaya importante talaga comprehensive medical exam yearly, this is one of the ways we can prevent symptoms lalo yung persistent. Kaso magastos talaga.
I dont think its the vaccine..but its more linked to Covid19 virus. sa dami nang tinamaan ng Covid noon bata matanda vaccinated or hindi, ngayon lang naglabasan ang mga side effect na yan?
5ft ako tapos nakaheels nung nakabangga ko sya sa labas ng araneta nung concert ng backstreet boys dati super damingn tao,Pinicturan ko agad ng malapitan and based sa pic ko pogi tlga sya and mejo matamgkad nga siguro kasi parang nakatingala pa rin ako nung nagpic
Dami ng mg ganyang mga sakit na sobrang mahal ng treatment. From Kris Aquino to Celine Dion. Yong kay Celine, walang issue sa financial kasi ang daming pera but her, is the problem. Di na kaya ng katawan niya ang spasms. Wala pa ring cure sa sakit na yan. Sana maging ok sya. Her sister updated the public bout her situation. Sad to say, she’s not in her best situation. Sana walang masamang mangyari kay Celine. Malalagasan na naman ang Vocal Trinity. Whitney x Celine x Mariah
Ano bang sakit ni fiance?
ReplyDeleteAccording to the fiance’s IG post, she has a rare autoimmune disease called Dermatomyositis that causes muscle weakness, inflammation and a skin rash.
DeleteYou’re welcome klasmeyts!
Is his fiancee seriously ill?
ReplyDeleteMalala ba ang sakit ng finace?
ReplyDeleteMay idea ba mga ka marites dito anong medical condition ng fiance nya?
ReplyDeleteMukhang may autoimmune disease :(
DeleteDermatomyositis—a rare autoimmune disease. Saw from her IG that she just released a wordpress blog about her journey.
DeleteSame b to ng kay kris aquino?
DeleteWhatever happensz i choose you
ReplyDeleteOmg sounds serious
I think he is just reassuring her that nothing has changed
DeleteIn sickness and in health
DeleteGet well soon fiancé.
ReplyDeleteGet well sa fiancee niya. She was diagnosed with a rare autoimmune disease called Dermatomyositis (with Anti-MDA5 antibodies) as per her blog.
ReplyDeleteKaya ba nya binenta condo nya?
ReplyDeletenot really, sabi ni Robi before he's letting go of his bachelor pad to make way for his forever home. so magpapatayo ata ng bahay for them.
DeleteMagpapatayo sana ng house na kasi ready na nagka family
Delete“On July 14, 2023, I was diagnosed with a rare autoimmune disease called Dermatomyositis (with Anti-MDA5 antibodies) after almost three months of doing all kinds of medical tests, scans and even a heart, pulmonary and muscle exam. “
ReplyDeleteOmg..as per mayo clinic wala pa ito.cure.. ang treatment nya lng is to clear the rashes and to regain muscles and joint strenght..
DeleteThey shared her condition sa stories ni Robi. Autoimmune disease daw. I hope she gets better. 🙏
ReplyDeletepansinin nyo andami nang rare na nagiging common.. that should tell you something.
DeleteYes! Covid caused it.
DeleteShe has an autoimmune disease po na dermatomyositis.
ReplyDeleteRobi posted a link to her blog. She has Dermatomyositis which is a rare autoimmune disease that causes muscle weakness, inflammation, and a skin rash.
ReplyDeleteShe has a rare autoimmune disease like ung ke Kris Aquino, muscle weakness,rashes, inflammation 😢
ReplyDeleteYes like kay kris na autoimmune disease, but i don't think they have the same type of autoimmune disease. They may have the same symptoms but diagnosis is different.
DeleteAccording to Maiqui’s IG she has an autoimmune disease called dermatomyositis. I hope she will be healed
ReplyDeleteGet well soon sa fiancee niya, just red her story 😔
ReplyDeleteI read somewhere that they're trying out Rituximab as treatment . Search nyo nalang what's it for coz I'm not sure din kung ano talaga sakit nya.
ReplyDeleteThat's a typical drug they give to cancer patients too
DeleteMay DERMATOMYOCITIS si beautiful fiancée, isang rare autoimmune disease.
ReplyDeleteIgnorant yet a very innocent question, pang mayaman lang ba yung autoimmune disease?
ReplyDeleteNo. Daming may autoimmune na financially-challenged. Ang hirap kasi ang mahal ng meds tapos maintenance sila.
DeleteI think that's a fair question. Sa tingin ko kasi pag mayaman, mas may opportunities and means lang to get proper diagnosis and get various opinions. Unlike pag walang pera, di na talaga malalaman kung ano ang sakit at sadly, mamamatay na lang without being treated.
DeleteAnyways, about sa topic, get well soon sa future wife nya and hopefully ma-manage nila ang symptoms at di naman maging progressive.
No, it affects everyone, auto immune disease symptoms kasi could be anything, need talaga thorough test to determine it magastos po kaya usually yung may kaya lang ang most of the time nalalaman ang specific aakit nila
DeleteHindi. Pero hindi sya madaling madiagnose at marami kang tests na gagawin to finally get to that diagnosis. Tests na karamihan may kamahalan kaya pabalik balik ka sa hospital. Kung di ka well off, mahirap to have all these tests done and baka hindi ka pa ma diagnose much less find the right treatment.
DeleteNo. Anyone may have it. But the tests to diagnose and medicines to manage it are expensive.
DeleteHindi. Maraming type ang autoimmune disease. They are treatable but have no cure. I have one which is Graves disease which causes hyperactive thyroid but after radioactive iodine treatment, I became hypothyroid, which needs a lifelong hormone supplement. So walang cure may option lang sa treatment. I can't stay hyperthyroidism cuz it weakens my bones and muscles, it also causes tachycardia. So my dr opted to damage my thyroid for good to turn my hyperthyroidism into hypo which is easier and safer to treat.
DeleteHindi. Super random sya nangyayari
DeleteSadly pang mayaman yung gastos. Mahal yung treatment and it's not curable. You also have to get all possible screenings for cancer kasi sometimes may kasamang cancer ang sakit na to.
DeleteHindi naman siguro pero dahil sila ang may means kaya nadedetect nila through tests, kung mga hindi magpapatingin dahil di afford di na talaga malalaman na may ganun silang sakit
DeleteNope. Very random disease. I have one and i'm not even rich
DeleteNo. It just so happens ang mahirap walang pera para magpa doctor. Katakot takot na test kasi yan na mahal so a local charity doctor wont be able to djagnose in just a few sessions
DeleteOf course not, pero syempre the rich ones can afford all the tests to get an accurate diagnosis
DeleteNo. Anyone can have it. Women are more prone to have it though. They say some microorganisms or drugs can trigger changes that confuses the immune system causing it to attack itself.
DeleteVery ignorant indeed. This is the same things as "mayayaman lang ba ang nilalagnat"
DeleteMay pera silang pambayad ng doctor para ma-diagnose.
Deleteoo, yung mga taong kalye nga ang tibay ng katawan sanay sa mikrobyo
DeleteHindi. Ex. Hyperthyroidism
DeleteNo. Pang mayaman Ang makaka diagnose ng autoimmune. Sa masa, kulam na Yan at dinala Kay Mang Kepweng
Deleteim not a doctor but maraming studies ngayon linking Covid and autoimmune disease. about 46% of people who previously got Covid are showing mild to severe signs and symptoms of autoimmune disease isa na ako don. lumabas ang arthritis ko and tingling sensations sa kamay at braso mga 7 months after ko na covid. grabe ang damage ng Covid sa katawan.
DeleteNo. Example is lupus. My niece passed away from lupus. Hindi sila mayaman.
DeleteWalang pinipili ang sakit. Madalas undiagnosed ang sa mga mahihirap or lack of knowledge ang lagi nila iniisip, kinulam sila. Totoo ito. Nagpunta kami sa isang remote na area sa rizal para mag medical mission. Madami sa kanila puro sugat sa legs hindi gumagaling. Sabi nila galit ang mga enkanto kaya sila sinusugatan. Yun pala mga diabetic sila. Kailangan explain sa kanila kasi hindi nila alam yung nga sintomas.
Delete@10:16 Buti na lang may vaccine na, right? Right ba o wrong? Coz now they're blaming the vaccine naman sa recent cases ng cardiac cases sa vaccine. Nakakainis!!!
DeleteThis @1:54 pm
DeleteThe access to medical care is the big difference @1:24 am
You usually need several rounds, prolonged tests and a team of specialists to rule out other factors and properly identify the issue.
Naalala ko tuloy yung joke dati “pag mayaman, allergy. Pag mahirap, galis”
DeleteAnyhow, in my opinion, mas distiguished lang ang sakit pag mayaman, kase nag coconsult sa doctors. While sa mahihirap, madalas dinededma na lang or sa faith healer pumupunta. Also, mas malakas ang immune system ng mahihirap kase mas exposed sa nature during their younger years.
Hindi ba? Nakakapagtaka, bakit ung mga mayayaman nagkakapimples and ang mamahal ng gamot for skin care. Habang yung mga nagwowork sa clubs/bar ang kikinis ng kutis pero pa safeguard at kojic soap lang.
2:51 open your mind some more.. it's becoming really obvious. ayaw lang tumingin ng karamihan. but it's really there.
DeleteI am taking Glutathione and Alpha Lipoic Acid supplements and it helps with my symptoms
Delete1:24am Hindi kami mayaman pero I was diagnosed with Hashimoto's Thyroiditis (Autoimmune Disease). You need a lot of funds to sustain the medications. :(
Delete7:31, mas mababa ang lifespan ng mahihirap kesa sa mayayaman.
Deleteget well soon.
ReplyDeleteAuto immune disease is for life na.
ReplyDeleteGet well soon fiance, stay strong Robi.
ReplyDeleteSuddenly sick ba sya o dati na nya yang sakit?
ReplyDeletemedyo nauuso yan after nung global chuva. sudden sickness, sudden cancer, sudden alam nyo na..
Delete1:24 Nope. Pwede mangyari kahit kanino. Bata, matanda, anuman kasarian at estado sa buhay.
ReplyDeleteyaikks.. bakit andami auto-immune diseases na lumalabas lately... may kinalaman ba sa mga gamot na iniinom, vitamins na tini-take? gluta injections? mga classmates enlighten me..
ReplyDeletevaccines po. pansin niyo after covid vaccine dami naglalabasan sakit
DeleteI think we can link it more sa stress. Not sa vaccine. Lahat tayo nastress during that time na naging uncertain lahat. Madalas lumalabas symptoms ng autoimmune disease kapag nagkaroon ng sudden change sa katawan natin. Mostly during puberty, kapag 1st time mastress sa trabaho, kapag nakaranas ng matinding pagsubok. Etc. Rest assure majority ng meron may family history na talaga, in any form. Pwedeng lolo mo may lupus ikaw HS, Psoriasis etc. Another related topic although it's not an autoimmune disease is HIV. Baka di mo alam meron ka pala kasi pwedeng namana mo, or naexposed ka pala unknowingly. Kaya importante talaga comprehensive medical exam yearly, this is one of the ways we can prevent symptoms lalo yung persistent. Kaso magastos talaga.
Delete2:50 may proof ka po? Please stop spreading false information based on haka haka.
Delete2:50 andami pa ding di nakaka-connect. sana maagapan si madam para maikasal na sila. kawawa naman at the prime of her life tas ganyan na..
Delete2:50 Tigil mo yan ate
DeleteI dont think its the vaccine..but its more linked to Covid19 virus. sa dami nang tinamaan ng Covid noon bata matanda vaccinated or hindi, ngayon lang naglabasan ang mga side effect na yan?
DeleteOh my! Hirap pa naman pag auto immune.
ReplyDeleteAuto immune conditions are just one of the worst diseases out there. It's unpredictable and it's hard to manage. My spouse has one 😪
ReplyDeleteSad naman
ReplyDeleteMagaling mag host tong si Robi lalo na sa mga private events. I thought maliit lang siya pero ang tangkad pala.
ReplyDeleteDami nyang affectation kaya nakakainis panoorin minsan
Delete4:59 wag ka na mainis, wag ka na din manuod. Hahaha
DeleteBasketball player sya nung high school, college ata sa Ateneo, pasok nya sa pbb dalawa sila basketball player kinuha Ateneo and la salle
Delete7:29 Not true
Delete5ft ako tapos nakaheels nung nakabangga ko sya sa labas ng araneta nung concert ng backstreet boys dati super damingn tao,Pinicturan ko agad ng malapitan and based sa pic ko pogi tlga sya and mejo matamgkad nga siguro kasi parang nakatingala pa rin ako nung nagpic
DeleteTuloy pa ba ang kasal?
ReplyDeleteIt’s so sad kasi I read from her fiance’s post that she has healthy and active lifestyle but still got this rare disease.
ReplyDeleteDami ng mg ganyang mga sakit na sobrang mahal ng treatment. From Kris Aquino to Celine Dion. Yong kay Celine, walang issue sa financial kasi ang daming pera but her, is the problem. Di na kaya ng katawan niya ang spasms. Wala pa ring cure sa sakit na yan. Sana maging ok sya. Her sister updated the public bout her situation. Sad to say, she’s not in her best situation. Sana walang masamang mangyari kay Celine. Malalagasan na naman ang Vocal Trinity. Whitney x Celine x Mariah
ReplyDelete